Our Story

In January of 2009 our only two sons were diagnosed with Duchenne Muscular Dystrophy(DMD) at the ages of 5 and 2. DMD is a horrible disease that is fatal 100% of the time with no current cure. This disease affects 1 in 3500 boys born each year with no ethnic or geographical boundaries. When we received the news it was the most overwhelming and unbelievable time a parent could face.

The first year was full of doctor appointment’s, disbelief and a foggy understanding of why us. Then we decided to start a foundation to fund research so a cure can be found. We hope with the research being done all over the world we can spare parents in the future of the news we received.