"We hope with the research being done all over the world we can spare parents in the future of the news we received."
In January of 2009 our only two sons were diagnosed with Duchenne Muscular Dystrophy(DMD) at the ages of 5 and 2. DMD is a horrible disease that is fatal 100% of the time with no current cure. This disease affects 1 in 3500 boys born each year with no ethnic or geographical boundaries. When we received the news it was the most overwhelming and unbelievable time a parent could face.
The first year was full of doctor appointment’s, disbelief and a foggy understanding of why us. Then we decided to start a foundation to fund research so a cure can be found. We hope with the research being done all over the world we can spare parents in the future of the news we received.